Susan Nieber, I only just found you.

The blogosphere is likely to be on fire today with the name Susan Nieber…

as well it should.

I only found her blog a week ago, which some of you may find odd since she was widely known for her blog, Toddler Planet.

Some words and phrases that I now associate with Susan:









inflammatory breast cancer




From what I can tell, she was like a planet.  Once you were introduced to her atmosphere, the gravitational pull seemed so strong that most wanted to circle and circle… to soak her up… to be near her vastness.  And like a planet… for years… she was in an almost constant  state of living and dying.  She lived in the most magnificent ways… while pieces in her body died.

Susan was a four time cancer survivor.

The first post I read of hers was this one: How Did We Get Here?  It’s a simple conversation she has with her husband after coming home for hospice care.  I was so struck by her grace.  I poured through her site.  It was my first post.  It was her last.

Susan Niebur passed away on February 6, 2012.  She lived the last five years with inflammatory breast cancer, a rare and aggressive form of breast cancer that presents without a lump.

So instead of telling you a story about myself today, I’d like to point you to Toddler Planet, where she chronicled her fight.  She will touch you in ways I never could.

And if you’re a woman, sign up for the Army Of Women.  You can help researchers find a cure.

Susan was a BlogHer Voice of the Year in 2010, and you can watch her read her winning post here:



I only just met her…

and I very much miss her.

Rest in peace, Susan.



UPDATED:  The lovely Stephanie, over at dial m for minky, is collecting stories of Susan to bind into a book for her two boys.  If you have something you’d like to contribute go here- Stop All The Clocks.

8 responses to “Susan Nieber, I only just found you.”

  1. Megan says:

    That post was my introduction to her as well, and her family has been in my thoughts all day.

  2. I found Susan a few months ago and regret not making an effort to connect with her more, I was more silently skulking and reading.

    Her passing broke my heart. That she will never see her two boys grow up to be men, just tore me apart.

    It was truly lovely of you to write this, Jenni.

  3. MommaKiss says:

    I’ve read her and followed her story since my friend was diagnosed with breast cancer in 2010. She seems everything you’ve said, so wonderfully.

    I found army of women through Susan, such a gift she gave me

  4. What a beautiful tribute you have written! I have been a reader but knew her the most from twitter. On more than one occasion she offered encouragement and support as I bounced between doctors appointments. She was such an amazing person in so many ways.

  5. Thank you for introducing us to Susan, what a beautiful tribute. Prayers for her family and friends.

  6. ChiMomWriter says:

    I only found her blog a few months ago through a mutual blogging friend. When I posted about her passing yesterday, it turned out that a family in my playgroup went to grad school with her and knew her family well.

    It’s amazing how the Internet brings both the good and bad so much closer.

    I hope her family is feeling how much overwhelming love is out there for Susan right now.

  7. ChiIL Mama says:

    Powerful stuff! All the more reason early detection funding is worth fighting for for ALL women…..not just the ones with rich husbands or jobs with great health insurance!!

    Here’s someone in Chicago, we’ve covered shows for, who was newly diagnosed. Want to do something personal & political. Help her out yourself and spread the word!!

    The Buddies’ drummer, Kim Collins, has been diagnosed with breast cancer. Her band leader, Coley Kennedy, has set up an online fundraiser to help with medical and living expenses ( He has already raised over $7500.00 and the campaign ends March 2, 2012.

    Here’s our last show shots of The Buddies playing Empty Bottle in Chicago.

  8. I just met her after BlogHer, in September.

    Never thought she’d be gone from us within 6 months.

    Life…always having my head spin.

    BEAUTIFUL WORDS here for her, Jenny. So beautiful.

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